Trust as a starting point for data sharing in healthcare

Trust as a Starting Point for Data Sharing in Healthcare
In the rapidly evolving world of healthcare, data plays an increasingly important role; in improving the quality of care, the value of research and tackling complex medical problems. We spoke to Prof. Mat Daemen, an expert in healthcare and data sharing, to gain insight into how collaboration and data sharing are transforming healthcare in Amsterdam and beyond.
“Trust is key,” Daemen repeated, “especially at board level.” He explains that establishing trust is crucial to realize data exchange. Directors often see a lot of value in sharing data, but are reluctant due to legal rules. “The challenge for successfully sharing data is not so much about technology,” says Daemen. “It is much more about good agreements and frameworks.” With trust from the top down, data sharing can really take off.

 

Data as a Driver for Improvements
“Data sharing is the key to improving healthcare,” says Daemen. By sharing data for secondary research use, medical professionals can gain greater insight into patient data. It is essential that the legal and ethical aspects of data sharing are carefully addressed and that data is anonymized. The initiative that Daemen has set up together with the Amsterdam Economic Board starts with sharing data for research, but the ambitions go further than that. The aim is to promote data sharing at all levels of healthcare, from hospitals to GPs and even individual citizens.

 

Start of a Broad Collaboration
A few years ago there were more initiatives to share data. “Regulations have put a brake on this,” Daemen explains. However, the need was no less great and together with the Amsterdam Economic Board, Daemen took a different path. Their goal was to facilitate data sharing in the region. Currently, three hospitals, including Amsterdam UMC, OLVG and NKI/AVL, have taken the lead in promoting data sharing. The goal is to expand this collaboration to all regional hospitals in the future.

 

Everyone wins
Sharing data offers benefits for both patients and healthcare institutions. For patients, this means better coordination of care, resulting in a seamless transition between different healthcare providers. For healthcare institutions, data sharing opens the door to improved research and treatment options, leading to higher quality of care. Data sharing is the driving force behind innovation and improvements in healthcare.

 

The Future of Healthcare
Healthcare faces a future in which data plays a central role. Data sharing will transform healthcare and emphasize prevention, collaboration and the integration of health and wellness. “Sharing data can be the key to improvements in healthcare,” says Damen. This development can benefit both the health of individuals and society as a whole.